Estudos da deficiência na produção acadêmica
uma cartografia nas arenas do Norte-global
DOI:
https://doi.org/10.1590/18070337-122287Palavras-chave:
estudos da deficiência, modelo social, produção científica, sociologia do conhecimento, bibliometriaResumo
Qual seria o lugar dos estudos da deficiência na prática científica contemporânea? Em que medida a circulação de investigações que questionam ontologias capacitistas e posicionam a deficiência como um marcador social relevante para a compreensão das diferentes formas de apagamento e de opressão social estaria influenciando o desenvolvimento de novas agendas de pesquisa? A partir de um mapeamento de 2.864 documentos registrados nas bases de dados Scopus e Web of Science entre os anos de 1956 e 2020, este artigo procura descrever as tendências gerais de produção e a estrutura intelectual dos estudos da deficiência ao longo das últimas sete décadas. A intenção é oferecer um mapa atualizado dos principais periódicos, autores e autoras, repertórios teóricos, enfoques heurísticos e sujeitos políticos que disputam visibilidade e legitimidade no cenário internacional da produção de conhecimentos a respeito da deficiência. Os resultados desta investigação sugerem que a deficiência é uma categoria plural e em construção nos meios científicos especializados; simultaneamente analítica e política, ela se organiza em torno de múltiplas áreas que participam da coprodução de distintos modelos de interpretação e de construção das vidas das pessoas com deficiência.
Downloads
Referências
ALBRECHT, Gary L. American pragmatism, sociology and the development of disability studies. In: BARNES, Colin; BARTON, Len; OLIVER, Mike. (eds.). Disability studies today. Oxford: Blackwell Publishers Ltd., 2002. p. 18-37.
ARIA, Massimo; CUCCURULLO, Corrado. Bibliometrix: an R-tool for comprehensive science mapping analysis. Journal of Informetrics, v. 11, n. 4, p. 959-975, 2017.
BARNES, Colin. A legacy of oppression: a history of disability in western culture. In: BARTON, Len; OLIVER, Mike. (eds.). Disability studies: past, present and future. Leeds: The Disability Press, 1997. p. 3-24.
BARNES, Colin. What a difference a decade makes: reflections on doing “emancipatory” disability research. Disability & Society, v. 18, n. 1, p. 3-17, 2003.
BLOCK, Pamela; KASNITZ, Devva; NISHIDA, Akemi; POLLARD, Nick. Occupying disability: an introduction. In: BLOCK, Pamela et al. (eds.) Occupying disability: critical approaches to community, justice, and decolonizing disability. Dordrecht: Springer, 2016. p. 3-14.
CALLON, Michel. Society in the making: the study of technology as a tool for sociological analysis. In: BIJKER, Wiebe; HUGHES, Thomas P.; PINCH, Trevor. (eds.). The social construction of technological systems: new directions in the sociology and history of technology. Cambridge: Mass., Mit Press, 1986. p. 83-103.
CAMPBELL, Fiona K. Eugenics in disguise? Law, technologies and negotiating the “problem” of “disability”. Australian Feminist Law Journal, v. 14, n. 1, p. 55-70, 2000.
CAMPBELL, Fiona K. Legislating disability: negative ontologies and the government of legal identities. In: TREMAIN, S. (ed.). Foucault and the government of disability. Michigan: The University of Michigan Press, 2005. p. 108-132.
CAMPBELL, Fiona K. Litigation neurosis: Pathological responses or rational subversion? Disability Studies Quarterly, v. 25, n. 4, 2006.
CAMPBELL, Fiona K. States of exceptionality: provisional disability, its mitigation and citizenship. Socio Legal Review, v. 3, n. 1, p. 28–50, 2007.
CAMPBELL, Fiona K. Exploring internalized ableism using critical race theory. Disability & Society, v. 23, n. 2, p. 151-162, 2008.
CAMPBELL, Fiona K. Contours of ableism: the production of disability and abledness. New York: Palgrave Mcmillan, 2009.
CARNIEL, Fagner. Agenciar palavras, fabricar sujeitos: sentidos da educação inclusiva no Paraná. Horizontes Antropológicos, v. 24, n. 50, p. 83-116, 2018.
CARNIEL, Fagner; MELLO, Anahí G. Quem escreve pela deficiência no pensamento social brasileiro? Contemporânea - Revista de Sociologia da UFScar, v. 11, n. 2, p. 490-505, 2021.
DAVIS, Lennard J. Enforcing normalcy: disability, deafness, and the body. London: Verso, 1995.
DIAS, Adriana A. M. Observando o ódio: entre uma etnografia do neonazismo e a biografia de David Lane. Tese (Doutorado em Antropologia Social), Universidade Estadual de Campinas, 2018.
DINIZ, Debora; MEDEIROS, Marcelo; SQUINCA, Flávia. Reflexões sobre a versão em português da Classificação Internacional de Funcionalidade, Incapacidade e Saúde. Cad. Saúde Pública, v. 23, n. 10, p. 2507-2510, 2007.
EDITORIAL. Disability, Handicap & Society, v. 1, n. 1, p. 3-4, 1986.
FERREIRA, Naidson C. S.; SOUZA, Calixto J.; SILVA, João. H.; FERNANDES, Woquiton L. Bibliometric study about educational policies for people with disabilities, between 1997 to 2014. Revista Eletrônica de Educação, v. 11, n. 3, p. 817-829, 2017.
FREIRE, Paulo. Pedagogy of hope: reliving pedagogy of the oppressed. London: Bloomsbury Publishing, 2004.
GOODLEY, Dan. Dis/entangling critical disability studies. Disability & Society, v. 28, n. 5, p. 631-644, 2013.
GOODLEY, Dan. Disability Studies: An interdisciplinary introduction. London: Sage, 2016.
GOODLEY, Dan; LAWTHOM, Rebecca. Critical disability studies, Brexit and Trump: a time of neoliberal–ableism. Rethinking History, v. 23, n. 2, p. 233-251, 2019.
HARAWAY, Donna. Simians, cyborgs, and women: the reinvention of nature. New York: Routledge, 1991.
HAMPTON, Jameel. Peace news and radical disability writing in 1970s Britain: Perceptions of welfare and the welfare state. Disability Studies Quarterly, v. 40, n. 2, 2020.
HOGE, William F. The disability rights movement: list of resources. Excellence in Education Journal, v. 8, n. 2, p. 51-63, 2019.
HUBBARD, Ruth. Prenatal diagnosis and eugenic ideology. Women's Studies International Forum, v. 8, n. 6, p. 567-576, 1985.
HUYARD, Caroline. How did uncommon disorders become “rare diseases”? History of a boundary object. Sociology of Health & Illness, v. 31, n. 4, p. 463-477, 2009.
JENKS, Andrew. Crip theory and the disabled identity: why disability politics needs impairment. Disability & Society, v. 34, n. 3, p. 449-469, 2019.
KHOO, Selina; LI, Chunxiao; ANSARI, Payam. The top 50 most cited publications in disability sport: a bibliometric analysis. Perceptual and Motor Skills, v. 125, n. 3, p. 525-545, 2018.
KITTAY, Eva. F. The ethics of care, dependence, and disability. Ratio Juris, v. 24, n. 1, p. 49-58, 2011.
LINTON, Simi. Disability studies/not disability studies. Disability & Society, v. 13, n. 4, p. 525-539, 1998.
LOPES, Pedro. Deficiência como categoria do Sul global: primeiras aproximações com a África do Sul. Rev. Estud. Fem., v. 27, n. 3, e66923, 2019.
MEEKOSHA, Helen. Decolonising disability: thinking and acting globally. Disability & Society, v. 26, n. 6, p. 667-682, 2011.
MCRUER, Robert. Critical investments: AIDS, Christopher Reeve, and queer/disability studies. Journal of Medical Humanities, v. 23, n. 1, p. 221-237, 2002.
MCRUER, Robert. Crip eye for the normate guy: Queer theory and the disciplining of disability studies. PMLA, v. 120, n. 2, p. 586-592, 2005.
MCRUER, Robert. Crip theory: Cultural signs of queerness and disability. New York: New York University Press, 2006.
MCRUER, Robert; MOLLOW, Anna. Introduction. In: MCRUER, Robert; MOLLOW, Anna (eds.). Sex and Disability. London: Duke University Press, 2012.
MOORE, Mike. Disability, activism and the academy: time for renewal? Disability & Society, v. 34, n. 7-8, p. 1025-1027, 2019.
OLIVER, Mike. The politics of disablement. London: Macmillan, 1990.
OLIVER, Mike. Changing the social relations of research production? Disability, Handicap & Society, v. 7, n. 2, p. 101-114, 1992.
OLIVER, Mike. Activism and the academy: losing the ideological and material battles. Disability & Society, v. 34, n. 7-8, p. 1028-1033, 2019.
OLIVER, Mike; BARNES, Colin. Back to the future: the World Report on Disability. Disability & Society, v. 27, n. 4, p. 575-579, 2012.
PATTERSON, Lindsey. Points of access: rehabilitation centers, summer camps, and student life in the making of disability activism, 1960-1973. Journal of Social History, v. 46, n. 2, p. 473-499, 2012.
QUERG, H. Zur Frage der Frühinvalidität; Untersuchungen bei der Versicherungs-Anstalt, Berlin 1951-1953 [Problem of early disability; studies of the Berlin Institute of Social Security, 1951-1953]. Zeitschrift fur arztliche Fortbildung, v. 50, n. 6, p. 263-268, 1956.
R CORE TEAM. R: A language and environment for statistical computing. V. 3.5.3. Vienna, Austria: R Foundation for Statistical Computing, 2019.
SHAKESPEARE, Tom. Choices and rights: eugenics, genetics and disability equality. Disability & Society, v. 13, n. 5, p. 665-681, 1998.
SHAKESPEARE, Tom. “Losing the plot”? Medical and activist discourses of contemporary genetics and disability. Sociology of Health & Illness, v. 21, n. 1, p. 669-688, 1999.
SHAKESPEARE, Tom. Help. Birmingham: Venture Press, 2000.
SHAKESPEARE, Tom. Disability studies today and tomorrow. Sociology of Health & Illness, v. 27, n. 1, p. 138-148, 2005.
SHAKESPEARE, Tom. Disability rights and wrongs. New York: Routledge, 2006.
SHAKESPEARE, Tom. The social model of disability. In: DAVIS, Lennard J. (ed.). The disability studies reader. New York: Routledge, 2010. p. 197-2004.
SHAKESPEARE, Tom; WATSON, Nicholas. The social model of disability: an outdated ideology? In: BARNARTT, Sharon N.; ALTMAN, Barbara (eds.). Exploring theories and expanding methodologies: where are we and where do we need to go? Amsterdam: JAI, 2001. p. 9-22.
SHILDRICK, Margrit. Critical disability studies: rethinking the conventions for the age of postmodernity. In: WATSON, Nick; ROULSTONE, Alan; THOMAS, Carol (eds.). Routledge handbook of disability studies. London: Routledge, 2012. p. 30-41.
SOUZA, Bruna A. S.; CARNIEL, Fagner. Quando o raro se torna comum: uma trajetória no mundo da adrenoleucodistrofia. Temáticas, v. 28, n. 55, p. 271-300, 2020.
THOMAS, Carol. Disability theory: key ideas, issues and thinkers. In: BARNES, C.; BARTON, Len; OLIVER, Mike. (eds.). Disability studies today. Oxford: Blackwell Publishers Ltd, 2002. p. 38-57.
THOMAS, Carol. Times change, but things remain the same. Disability & Society, v. 34, n. 7-8, p. 1040-1041, 2019.
UN- United Nations. World program of action concerning people with disabilities. New York: United Nations, 1982.
UPIAS - Union of the Physically Impaired against Segregation. Fundamental principles of disability. London: UPIAS, 1976.
VEHMAS, Simo; WATSON, Nicholas. Moral wrongs, disadvantages, and disability: a critique of critical disability studies. Disability & Society, v. 29, n. 4, p. 638-650, 2014.
WHO – World Health Organization. International classification of impairments, disabilities and handicaps. Genève: WHO, 1980.
WHO – World Health Organization. International classification of functioning, disability and health. Genève: WHO, 2001.
WHO – World Health Organization. World report on disability. Genève: WHO, 2011.
Downloads
Publicado
Como Citar
Edição
Seção
Licença
Copyright (c) 2023 Fagner Carniel, Adriana Abreu Magalhães Dias, Adonai José Lacruz

Este trabalho está licenciado sob uma licença Creative Commons Attribution 4.0 International License.
Autores que publicam nesta revista concordam com os seguintes termos:
Autores mantém os direitos autorais e concedem à revista o direito de primeira publicação, com o trabalho simultaneamente licenciado sob a Licença Creative Commons Attribution que permite o compartilhamento do trabalho com reconhecimento da autoria e publicação inicial nesta revista.