Female caregivers accompanying children with cancer in the hospital setting.

Resumen

The possibility of having a companion is a constitutional right guaranteed to children, elderly and parturients.
Independently of their stage in the life cycle, having a companion is a situation socially and culturally determined
in Brazil. This is a qualitative, descriptive-exploratory and interventionist study that aims to describe and discuss
the perceptions of female caregivers of children with cancer while accompanying them at the hospital. Data were
collected through a focal group with nine women, between March and May, 2007 at a teaching hospital in Porto
Alegre, Rio Grande do Sul, Brazil. The thematic analyses shows the participants’ passive and kind behavior in the
face of daily adversities, reflection of the power and authority conditions of the institutional objectives, so common
in health scenarios in the Brazilian reality. Emancipation could be reached through educative strategies, characterized
by information and dissemination of users’ rights as well as critical and demanding attitudes from the user when
confronted.